DG Research Survey (Dec 2016) Phase 1
Complete the survey on every child you have in your family with DG or complete for yourself if you have DG.
Who is completing this survey *
Your current city, state, country *
Your answer
Age of applicant
Your answer
Full Name of applicant (list one child at a time) *
Your answer
How long did it take from birth til you found out the diagnosis of DG? (in days)
Your answer
After the newborn screening was flagged did you know at that time your child had DG? Or were you told it was a type of Galactosemia, and you needed additional bloodwork for confirmation?
Did you complete a urinary galt and blood test to test for Galactosemia?
After a positive verification of bloodwork was done, did you receive information on the condition or did you have to search for information on your own?
Currently, what is your main method for information on DG? (choose one)
Is there a specific DG social media page you use the most?
Your answer
Is there a specific website you use the most? If so, list the site.
Your answer
Was your child breastfeed? If so, how many days, weeks or months?
Your answer
Any complications at birth?
Your answer
Any changes in the mother's diet during pregnancy?
What type of formula did you use? Please be specific.
Your answer
If your child is over 1 year of age, have you seen any delays? If not, type n/a
Your answer
If delays are present, what type of delays have been seen or diagnosed?
Your answer
If you had to give advice to a new mom with a DG child, what would it be?
Your answer
Name the doctor that currently cares for your DG child or yourself? Also, list the type of doctor he/she is (metabolic specialist, pediatrician, geneticist, etc).
Your answer
What type of improvements would you like seen in the DG medical community?
Your answer
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