Open Health Data Repositories (assembled by Steve Meloan)
 Share
The version of the browser you are using is no longer supported. Please upgrade to a supported browser.Dismiss

 
View only
 
 
ABCDEFGHIJKLMNOPQRSTUVWXYZAAABACADAE
1
Data RepositorySummary/Type of InformationURLData/Content/Both?Mode of Access
2
HealthData.govUmbrella site maintained by HHS, encompassing data from such federal agencies as CDC, Medicare/Medicaid, NCI, NIH, etc. Filterable by topic, federal agency, and year. Data available via a variety of different paths (depending on dataset)--API, and downloadable in varying file formats. Granularity at varying levels of state, county, city, zip, and occasionally by street address.http://www.healthdata.govData/Content.Accessible in various formats (JSON, XLS, XML, CSV, etc.) of downloadable datasets, as well as some API access. Depending on specific dataset.
3
HHS Syndication StorefrontCross-agency web syndication store, with advanced search by federal health agency, by media type (audio, HTML, image, infographic, video, widget), as well as language (english, spanish). Featuring content on such varied topics as end-of-life planning, chronic and infectious diseases, allergies, applying for federal health grants, and more. Content available via pre-packaged JavaScript code obtained from the syndication store, and by API.
https://digitalmedia.hhs.govSyndicated web content.API-driven syndication requests, can also be accessed via custom HHS API calls:
https://api.digitalmedia.hhs.gov
4
CDC Public Health Media LibraryCDC Media Library Syndication Store--includes web content, images, infographics, interactive widgets, podcasts, and videos. Searchable by broad topics such as Emergency Preparedness, Teen Health, Heart Health, Flu, as well as by specific diseases. Includes growing stable of defined "miscrosites" around topics like Ebola. Returns JavaScript embed code, enabling easy and seamless incorporation into web sites, with automatic updates. https://tools.cdc.gov/medialibrary/Syndicated Web Content that can include visual data and statistics.

API-driven syndication requests, can also be accessed via custom API calls using new HHS 3.0 cross-departmental API format:
http://tools.cdc.gov/api/docs/info.aspx#intro
5
Data.CDC.govSocrata-based data site. Includes numerical datasets, charts, maps, covering specific diseases as well as broad health topics like tobacco use, hospitalizations, vaccinations, etc. Depending on the dataset, can sometimes be filtered by region, state, and city. https://data.cdc.govContent and numerical data.Web-based interface for access/filtering, export downloads in such formats as PDF, CSV, JSON, XML, as well as access via Socrata SODA API.

6
CDC Chronic Disease Data SiteSocrata-based data site. Includes datasets on Chronic Disease Indicators,
Maternal & Child Health, and Tobacco Use.
https://chronicdata.cdc.gov/browseNumerical data.Web-based interface for access/filtering, export downloads in such formats as PDF, CSV, JSON, XML, as well as access via Socrata SODA API.
7
FDA Syndication StoreHealth information centered around tobacco effects and tobacco control. Includes content in Spanish. Returns JavaScript embed code, enabling easy and seamless incorporation, automatic updates. (NOTE: Since decommissioned, now links to Exchange Lab site below.)

https://tools.fda.gov/Syndicated Web Content. API-driven syndication requests, can also be accessed via custom API calls.
8
FDA/CTP Exchange Lab Tobacco-focused Media Syndication SiteTobacco-focused syndicated health campaign content (web store and API accessible)--including infographics, interactive widgets, video, photos, and text. Content can be browsed and selected by such categories as Prevention, Quitting, Research, Retailer Education, Regulation and Compliance, Youth, and Health Professionals. Selected content can be previewed, added to a "shopping cart," and with the provided JavaScript code snippet, easily embedded in a partner health site.https://digitalmedia.hhs.gov/tobacco/ Syndicated Web Content.API-driven syndication requests. Content can also be accessed via custom HHS API calls: https://api.digitalmedia.hhs.gov
9
openFDAGrowing body of API-accessible data offerings from FDA--Drug, Medical Device, and Food data. Presents database of adverse drug event, adverse device events, food enforecement reports, as well as GitHub tools. Data is already being used in mobile and web based applications (http://openfda.socialhealthinsights.com)

https://open.fda.gov/Numerical data.API (https://open.fda.gov/api/reference/)
10
FDA.socrata.comBeginning implementation of Socrata-based FDA data site. Includes food recall data, state drug dispensary data.https://fda.socrata.comNumerical data.Web-based interface for access/filtering, export downloads in such formats as PDF, CSV, JSON, XML, as well as access via Socrata SODA API.
11
Data.CMS.govSocrata-based Center for Medicare and Medicaid Services site--Medicare provider utilization and payment data, with information on services and procedures provided to Medicare beneficiaries by physicians and other health processionals. Can often be filtered by state, city, and even zip.https://data.cms.govNumerical and text.Web-based interface for access/filtering, export downloads in such formats as PDF, CSV, JSON, XML, as well as access via Socrata SODA API.

12
Data.Medicare.govSocrata-based direct access to the official data from the Centers for Medicare & Medicaid Services (CMS) that’s used on the Medicare.gov compare websites and directories--comparison data on hospitals, nursing homes, physicians, home healthcare, dialysis centers, and equipment suppliers. Can often be filtered by state, city, and even zip.https://data.medicare.govNumerical and text.Web-based interface for access/filtering, export downloads in such formats as PDF, CSV, JSON, XML, Microsoft Access Database, as well as access via Socrata SODA API.

13
14
NIAID (National Institute of Allergy and Infectious Disease) Syndication StoreNOTE: Content now featured under HHS Syndiction Storefront, and redirects there. Syndicated content that is searchable by broad topics such as Allergic Diseases, Asthma, as well as by specific diseases such as Flu, HIV, Malaria, Tuberculosis, etc. Returns JavaScript embed code, enabling easy and seamless incorporation, automatic updates.

http://tools.niaid.nih.gov/syndication/Syndicated Web Content. API-driven syndication requests, can also be accessed via custom API calls.
https://api.digitalmedia.hhs.gov/
15
YRBSS (Youth Risk Behavior Surveillance System)National, state, and local youth risk data, on topics such as tobacco, alcohol, sex, etc. Covers from 1991 to 2013, using data from high school and middle school surveys. Can be filtered and sorted by race/ethnicity, sex, grade. Can create customized tables and graphs. Note that data not currently available in several states, including CA.http://nccd.cdc.gov/youthonline/App/Default.aspxContent and numerical data.Web interface. While not explicitly API-driven, data tables can be downloaded in XML format.
16
BRFSS (Behavioral Risk Factor Surveillance System)--Adult version of YRBSS. Prevalence and Trends Data.Health stats on such risk topics as alcohol, diabetes, healthcare access, HIV/AIDS, hypertension, tobacco, obesity, physical activity, women's health, etc. Typically at state level of granularity. Variable in terms of years, but can span 1995 to 2013..

http://www.cdc.gov/brfss/brfssprevalence/Content and numerical data.Web interface. While not explicitly API-driven, filtered/custimized data can be downloaded in XLS format, saved as CSV file.

17
FluView Web AtlasNational and regional flu data. Can be filtered by year and flu strain to create customized tables and graphs.

http://gis.cdc.gov/grasp/fluview/fluportaldashboard.htmlContent and numerical data.Web interface. While not explicitly API-driven, filtered/custimized data can be downloaded in CSV format.

18
WISQARS (Web-based Injury Statistics Query and Reporting System)Fatal and non-fatal injury maps and statistics, in categories such as animal bites, falls, gun shots, assault, motorcycle, bicycle, etc. Can be filtered by US region, state, sex, age, ethnicity.

http://www.cdc.gov/injury/wisqars/Content and numerical data.Web interface. While not explicitly API-driven, filtered/customized data can be downloaded as CSV file.

19
WISQARS Fatal-Injury MappingFatal Injury Mapping (by such categories as drowning, firearm, poisoning, motor vehicle, etc., and filterable by gender, ethnicity, age. Downloadable map images, and CSV data tables.https://wisqars.cdc.gov:8443/cdcMapFramework/Content and numerical data.Downloadable map images and CSV data tables.
20
WISQARS Non-Fatal Injury Stats Non-Fatal Injury Stats (by such categories as assault, dog, submersion, fire, cutting, firearm, inhalation, etc., and filterable by gender, ethnicity, age, year.
Downloadable CSV data tables.
http://webappa.cdc.gov/sasweb/ncipc/nfirates2001.htmlNumerical data.Downloadable CSV data tables.
21
WISQARS National Violent Death Reporting SystemViolent Death Stats (by such categories as spouse, parent, child, gang, firearm, fall, hanging, drowning, etc., and filterable by year, location, ethnicity, gender, and military status). Displayed as web tables.https://wisqars.cdc.gov:8443/nvdrs/nvdrsDisplay.jsp
Numerical web tables.Web tables only.
22
NCHHSTP (National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention) Web AtlasSTD and infectious disease data/content--filterable by type of disease, year, state, county, ethnicity, sex, age.

http://www.cdc.gov/nchhstp/atlas/Content and numerical data.Web interface. While not explicitly API-driven, filtered/customized data can be downloaded as XLS and PDF, saved as CSV.

23
California HHS Open Data PortalSocrata-based state of California health data site. Includes datasets, charts, and maps, covering diseases and conditions, facilities and services, healthcare quality, and demographics.
Depending on the dataset, can sometimes be filtered by zip code.

https://chhs.data.ca.gov/Content and numerical data.Web-based interface for access/filtering, export downloads in such formats as PDF, CSV, JSON, XML, as well as access via Socrata SODA API.

24
DataSF (City and County of San Francisco)Socrata-based city and county of San Francisco data site. Includes public safety and health/social services datasets, charts, and maps. Depending on the dataset, can sometimes be filtered by zip code.

https://data.sfgov.org/Content and numerical dataWeb-based interface for access/filtering, export downloads in such formats as PDF, CSV, JSON, XML, as well as access via Socrata SODA API.

25
26
Applictions/Software Using Federal Data
27
Location-based AIDS Services Web AppHHS location-based AIDS services web map app (medical testing, housing, mental health, substance abuse, etc.) based on entered zip code.https://locator.aids.govWeb app.
28
"Solve the Outbreak" Health Game--Tablet App/Web AppCDC public health sleuth gaming app, melding public health eduction with adenture/sleuthing game. Lets gamers learn first-hand what medical epidemiologists do in the field. Gamification of public health.http://www.cdc.gov/mobile/applications/sto/web-app.htmlTablet app, web app.
29
CDC Mobile App ListingsListing of mobile apps produced using CDC content/data--targeting both the consumer and health providers/clinicians. Examples include map-based flu data (links to state-level flu sites) for the consumer, and STD treatment guidelines and vaccine schedules for medical clinicians.http://www.cdc.gov/mobile/mobileapp.htmlMobile apps.
30
HHS Digital Media API Software Platform (for web syndication). Sourceforge Hosted.Java and .NET software platform, letting partner health entities establish syndication sites for their own web content. Adopted by Ohio Department of Publich Helath, with content now accessed by Ohio county health entities. http://sourceforge.net/projects/contentservices/Software platform.
31
32
Tobacco-Specific Data Sites
33
YRBSS (Youth Risk Behavior Surveillance System) Tobacco Use DataTobacco-focused data on such survey topics as "smoked a cigarette before age 13," "currently smoking," "smoked more than 10 cigarettes per day," etc. Data can be filtered at national, state, territory, and local levels, by year (2003-2013), by gender, by race/ethnicity, and by school grade (9-12). Can create customized tables and graphs. Some state-level data not available (such as CA). Data tables can be downloaded in XML format.http://nccd.cdc.gov/youthonline/App/QuestionsOrLocations.aspx?CategoryId=C2Content and numerical data.Web interface. While not explicitly API-driven, data tables can be downloaded in XML format.
34
BRFSS (Behavioral Risk Factor Surveillance System)--Adult version of YRBSS, Tobacco Use DataTobacco focused data on current smokers, smoking status (daily, sometimes, former, never), and smokeless tobacco use. Data can be filtered at national and state level. Can be displayed in both tabular and graph forms, as well as trend data over time (2011-2013). Data tables can be downloaded in XLS format, saved as CSV.

http://nccd.cdc.gov/brfssprevalence/rdPage.aspx?rdReport=DPH_BRFSS.ExploreByLocation&rdProcessAction=&SaveFileGenerated=1&rdCSRFKey=c7d87fc6-7048-43e7-a240-024c3f0f1589&islLocation=98&islClass=CLASS17&islTopic=Topic55&islYear=2013&hidLocation=98&hidClass=CLASS17&hidTopic=Topic55&hidTopicName=Smoker+Status&hidYear=2013&irbShowFootnotes=Show&iclIndicators_rdExpandedCollapsedHistory=&iclIndicators=_SMOKER3&hidPreviouslySelectedIndicators=&DashboardColumnCount=2&rdShowElementHistory=&rdScrollX=0&rdScrollY=0&rdRnd=26007Content and numerical data.Web interface. While not explicitly API-driven, filtered/custimized data can be downloaded in XLS format, saved as CSV file.

35
Tobacco-focused datasets via Socrata-based Data.CDC.gov site (data drawn from YRBSS, BRFSS)Tobacco-focused smoking stats and maps, presented at national, state, and territory levels. Web interface, downloadable data, and API-accessible via Socrata SODA API.https://data.cdc.gov/browse?q=tobacco&sortBy=relevance&utf8=%E2%9C%93Content and numerical data.Web-based interface for access/filtering, export downloads in such formats as PDF, CSV, JSON, XML, as well as access via Socrata SODA API.

36
CDC OSHData Tobacco Use/Policy Data Portal (Socrata-based)Tobacco-focused datasets, charts, and maps detailing use, policy, legislation, and treatment stats. Web interface, downloadable data, and API-accessible via Socrata SODA API.https://chronicdata.cdc.gov/health-area/tobacco-useContent and numerical data.Web-based interface for access/filtering, export downloads in such formats as PDF, CSV, JSON, XML, as well as access via Socrata SODA API.

37
CDC Interactive Map Data on Tobacco Use (Needs URL update)Web-driven interactive map displays of tobacco use--among adults and youths. Presented at national and state levels, from 1995-2013. Includes graphic trend-line displays, mouse-over funcionality. Graphic images can be downloaded as JPG, and data can be downloaded as XLS. http://apps.nccd.cdc.gov/statesystem/InteractiveReport/InteractiveReports.aspxContent and numerical data.Web interface. While not API-driven, data can be downloaded in XLS format, images downloaded as JPG.

38
FDA/CTP "Exchange Lab" Tobacco-focused Media Syndication SiteTobacco-focused syndicated media content, including infographics, interactive widgets, video, photos, and text. Content can be browsed and selected by such categories as Prevention, Quitting, Research, Retailer Education, Regulation and Compliance, Youth, and Health Professionals. Selected content can be previewed, added to a "shopping cart," and with the provided JavaScript code snippet, easily embedded in a partner health site.https://digitalmedia.hhs.gov/tobacco/ Syndicated Web Content.API-driven syndication requests. Content can also be accessed via custom API calls.
39
CDC Public Health Media Library--Tobacco-focused Media (see "Smoking" in alphabetical list).Includes web content, images, infographics, interactive widgets, and videos. Returns JavaScript embed code, enabling easy and seamless incorporation into web sites, with automatic updates. https://tools.cdc.gov/medialibrary/index.aspx#/atoztopiclist/sSyndicated Web Content.API-driven syndication requests, can also be accessed via custom API calls using new HHS 3.0 cross-departmental API format:
http://tools.cdc.gov/api/docs/info.aspx#intro
40
CDC Sharable Digital Media--Tobacco-focused sharable videos, podcasts, buttons, interactive widgets, and other digital media. Easily embedded into partner web sites, and automatically updated.Highlighted tobacco-focused embeddable digital media--including videos, podcasts, buttons, and interactive widgets.http://www.cdc.gov/tobacco/multimedia/shareable/index.htmSyndicated Web Content.API-driven syndication requests.
41
42
43
Sugar-Specific Data Sites
44
Focus AreaData LayerYearsData GranularityStratified by AgeSource/AgencyLinkNotes
45
Dietary, Insulin/Glucose, Retinopathy
Diabetes, Sugar Consumption, Diabetic Disease1999-2014National--includes age, gender, race
YesCDC/NHANEShttp://www.cdc.gov/nchs/nhanes/nhanes_questionnaires.htm
Data available in XPT file format. Most recent year's page (2013-2104) does not yet contain data.
46
Dietary, Insulin/Glucose, Retinopathy
Diabetes, Sugar Consumption, Diabetic Disease1999-2014National--includes age, gender, race
YesCDC/NHANEShttp://wwwn.cdc.gov/nchs/nhanes/search/default.aspx
Excellent searchable web interface into NHANES datasets--exposing downloadable data files containing info on diabetes/pre-diabetes diagnoses, glucose/insulin levels, sugar consumption, retinopathy (directly attributed to diabetes). Most recent year's data (2013-2104) not yet available.
47
Diabetes DiagnosesDiabetes2004-2011State, county, year, genderNoCDC Diabetes Atlashttp://www.cdc.gov/diabetes/atlas/countydata/atlas.html
Data available in Excel file format. Important to note the "physical inactivity" data filter in the "Download Data" area, a valuable regional/cultural aspect of the diabetes data. Note also that "obesity" data is available here. "Maps and Motion Charts" on the site (Downloads) offer potentially valuable data visualizations by year, state, diabetes, and obesity--from 1994-2012.
48
Diabetes DiagnosesDiabetes1994-2012StateNoCDC Diabetes Surveillance System
http://gis.cdc.gov/grasp/diabetes/DiabetesAtlas.html
Data available in CSV file format.
49
Diabetes Diagnoses
Diabetes1994-2012
State, year
NoCDC Diabetes Atlas
http://www.cdc.gov/diabetes/atlas/obesityrisk/atlas.html
Data visualizations, providing motion by year for Diabetes vs. Obesity data at the state level. Could spark data visualization ideas, in terms of sugar consumption vs. diabetes.
50
Diabetes Diagnoses
Diabetes1980-2011
National, year, gender, race
YesCDC Diabetes Diagnoses
http://www.cdc.gov/diabetes/statistics/prevalence_national.htm
Web-based data tables, graphs. Would need to scrape data, or access by other means.
51
Diabetes Diagnoses, Health Impacts
DiabetesVariable depending on stats. (Diabetes, 1980-2011. Visual impairment, 1997-2011)
National, year, gender, race
YesCDC Statisticshttp://www.cdc.gov/diabetes/data/national.html
Web-based data tables, graphs. Would need to scrape data, or access by other means.
52
Diabetes Diagnoses, Health Impacts
DiabetesVariable
National, age ranges, gender, race, new diagnoses under 20 (by type 1 and 2)
YesCDC Statistics
http://www.cdc.gov/diabetes/pubs/statsreport14/national-diabetes-report-web.pdf
PDF-based Diabetes stats by age ranges, gender, ethnicity, new diagnoses under 20 (by type 1 and 2). Important estimated related health care costs. Useful stats, but currently in PDF info sheet. (Note:contains stats pertaining to diabetic-related amputations.)
53
Diabetes, Retinopathy
DiabetesUnknownUnknownUnknownCMS(Medicare/Medicaid)
http://www.cms.gov/medicare-coverage-database/staticpages/icd-9-code-lookup.aspx?KeyWord=retinopathy&bc=AAAAAAAAAAAEAA%3d%3d&
Diagnostic Codes for Retinopathy.

Action: Determine how to access the actual CMS agency data behind such diabetes related diagnoses.
54
Diabetes, Retinopathy
Diabetes2000, 2010Years (2000, 2010, 2030, 2050), age range, gender, race YesNIHhttps://www.nei.nih.gov/eyedata/diabetic
Web tables and charts of diabetic neuropathy data for 2000 and 2010. Listed by gender, ethnicity, and age ranges. Valuable data projections for 2030, 2050.
55
Sugar Production, Delivery, and ConsumptionSugar1970-2013NationalNoUSDAhttp://www.ers.usda.gov/data-products/sugar-and-sweeteners-yearbook-tables.aspx#25456
Downloadable XLS data files for sugar production, delivery, and consumption.

Action: Determine whether available at granularity of state, county.
56
Diabetes StatsDiabetes1988-2010
National YesCDC/NCHShttp://www.cdc.gov/nchs/hus/diseases.htm
Downloadable XLS data files for diabetes diagnoses..

Action: Determine whether available at granularity of state, county.
57
Sugar ConsumptionSugar Sweetened Beverage Consumption201218 StatesYesCDChttp://www.cdc.gov/mmwr/preview/mmwrhtml/mm6332a2.htm Also contains ethnicity breakdown
58
Sugar ConsumptionSugar Sweetened Beverage Consumption1999-2008NationalYesNational Health and Nutrition Examination Surveyhttp://www.ncbi.nlm.nih.gov/pmc/articles/PMC3662243/
59
Sugar ConsumptionSugar Sweetened Beverage Consumption2005-2008NationalYesNational Health and Nutrition Examination Surveyhttp://www.cdc.gov/nchs/data/databriefs/db71.pdf Also contains demographic data
60
Sweetener Delivery Market DataSweetener market data deliveries, by region and by food desination (beverages, ice cream, confections, etc.). 1991-2014RegionalNoUSDAhttp://www.fsa.usda.gov/FSA/webapp?area=home&subject=ecpa&topic=dsa-hs
61
62
63
64
65
66
67
68
69
70
71
72
73
74
75
76
77
78
79
80
81
82
83
84
85
86
87
88
89
90
91
92
93
94
95
96
97
98
99
100
Loading...
 
 
 
Sheet1