Name of Project: The Ability Commons

1. Summarize your idea and vision for this project. How does it utilize the unique features of a virtual world?

Imagine a paralyzed 23-year-old lying in his family’s back bedroom, yearning for contact with age peers in similar situations. SL offers people with serious physical and cognitive disabilities opportunities to socialize and get information, often through one or more of the over 70 SL health support groups.

Some support groups are inworld entities of RL organizations, with means to finance identifiable “homes.” These well-supported groups flourish and grow. Smaller support groups struggle to exist and promote their presence, and often fail to thrive. As many as half of identified SL health support groups may fall into this category.

The Health Support Coalition and partners propose an “Ability Commons,” similar to the Nonprofit Commons, that provides a home presence for smaller and emerging SL health support groups. The Commons will also provide shared meeting spaces and enable these smaller groups to network and offer mutual support.


We believe that community is the goal of Second Life, and intend to use SL’s networking capabilities to reach beyond RL limitations of geography and health, enhancing awareness within – and beyond - the SL community of support for people with disabilities.


2. Who is your intended audience and who will participate directly?


Primary audiences of this project are the small and emerging SL support groups for people with disabilities and chronic health issues. The Health Support Coalition currently represents approximately 30 SL support groups. Of those, about a third (including the Agoraphobia Support Group, Open Gates Peer Support Community, and Let’s Face It) are small and do not have a place to call “home.” Many others, not yet members of the Coalition, are also small and landless. Leaders of small and emerging support groups and of other groups that could provide services to them have expressed interest in working on this project and are listed in the Project Team section.


In addition to primary audiences, significant secondary audiences exist. Individual members of each support group will be better served since groups will be more likely to endure and provide appropriate services to members. As the groups will be collected in one site, caregivers, health-care professionals, researchers, educators, and the general public will directly benefit from information that is more easily available at the Ability Commons. Further audiences may include members of the press and charitable health-related organizations.

3. What is the scope of your endeavor and what would you most like to accomplish?

Ability Commons will be a one-stop island “home” for smaller and emerging support groups. In addition to those groups identified through their membership in the Coalition, it is likely that many non-Coalition health support groups will participate. Therefore, with room for expansion as new support groups emerge, this island will be designed for approximately 40 small groups. It will be landscaped as a series of structures connected by paved level pathways, similar to the NonProfit Commons. These structures will be variously-styled, accessible storefronts. Centrally located headquarters for the administrative groups, shared small- and medium-sized meeting rooms, and an accessible auditorium will complete the space. Administrative organizations will assist the support groups in forming and planning for maintenance, and will collaborate with them to offer scheduled presentations and provide validated information.

The proposed Ability Commons will enable new health support groups and strengthen smaller existing ones. Support groups provide valuable services to members such as:

4. What *public good* benefits do you see created through your proposed endeavor?

We aim to provide social justice for a category of people who experience extreme oppression in Real Life. For us, this is the meaning of “public good.” Participating in SL is difficult for people with disabilities, who need additional social and educational supports beyond those usually offered. Support groups offer those kinds of support, but not all support groups can do this well. Aiding smaller support groups means more potential group members receive benefits.

Large support groups are often aided by either a national organization (e.g., the American Cancer Society) or a foundation (e.g., the Boomer Esiason Foundation). They usually have adequate resources to function well and maintain themselves. Smaller groups need assistance. This grant’s purpose is to level the playing field a bit for these small groups and to serve as an incubator for those just emerging. The disabled are a diverse group, so their support systems should be similarly diverse. The disabled population is not adequately served only through the large organizations; smaller ones are necessary.

Equally important, publicity generated by the Ability Commons will benefit all people with disabilities by bringing attention to those with chronic illness or disability as important elements of the SL community.


5. At the end of this challenge, what "real world" impact will you measure as your basis for success?


Real world direct outcome impact will be measured by quantitative metrics of tenant groups such as: numbers of supported groups, growth in membership within these groups, and attendance at events sponsored by participating groups. We also expect closer ties between SL support groups and RL organizations, as reported by SL support group leaders.

Qualitative metrics will include descriptions of services provided by Ability Commons as a whole and by administrative partner organizations to tenants, including voluntary questionnaires to tenant members about educational aspects of the support group and the enhancement of the functioning of their group.

6. Do you, or your team have a solid track record and positive success stories in Second Life or other virtual spaces?

The Health Support Coalition, an SL group of leaders of support groups for people with health or disability challenges, was formed by The Sojourner, Carolina Keats, and Gentle Heron to address:


The Coalition has assisted member groups to create various outreach products (posters, informational notecards). It has informed its members about collected information on SL support groups (Path of Support, SLHealthy wiki).


The Coalition assisted SLang Life with a day-long health care event on February 9, 2008. Members of the Coalition presented to a general audience. Transcripts of these presentations formed the basis of the spring issue of Slang Life (SL/RL) magazine.


Members of the Health Support coalition as individuals have participated in SL in a variety of ways. Carolina Keats directs activities on HealthInfo Island, including the Consumer Health Library and Acccessibility Center. Gentle Heron is a co-founder of the Heron Sanctuary and president of its RL parent, Virtual Ability, Inc. Both are involved in creating a disability-supporting Orientation Facility on Virtual Ability Island. Leaders of smaller support groups and allied organizations are described in the Project Team section.

Budget

Include a list of in-world resources required to complete the Community Challenge within a three-month timeframe, including land. Be specific about how you would spend the L$100,000 per month for the three months award for this project.



The Ability Commons project will require donation of an island and the first three months of tier payment. The two islands now used by the NonProfit Commons house, respectively, 32 organizations on the first island and 44 on the second. To adequately serve the existing and planned smaller SL disability support groups, space equivalent to a full island is necessary. The advantage of placing these all on a single site is that the group as a whole can advertise its members’ services to SL residents. The Ability Commons’ strong presence can help focus charitable efforts.

Of the cash award, we would use L$100,000 to purchase accessible storefront office buildings, meeting spaces, an auditorium, plants, and textures necessary to create a welcoming environment. We would use donated and freely available materials whenever possible. However, we will not compromise on two features: accessibility and quality.

The remaining L$200,000 will purchase approximately 40 hours at approximately $US20/hour of services from a professional designer/builder. Again, we may be able to get some of this work done as a donation, but we want to maintain the quality and overall professional appearance of the project build.

Ongoing costs are minimal. No paid staff are proposed for this project. The only continuing cost is monthly tier. This is the reason for the listed task (3a) of finding and applying for a grant to cover that expense. By establishing a viable presence within SL, our project will attract funding for continuation of this worthwhile effort. Additional sources of revenue will include donation kiosks and fund-raising events such as charity dances or concerts. Additionally, as small groups are supported and encouraged to connect to their corresponding national organizations, the possibility of sustaining funding from RL sources increases.

Time Line for Project Completion

Include target dates for project milestones between July 16th through October 16, 2008 with clear benchmarks to measure success.



1. Island Preparation

  1. procure island

  2. initial layout of island

  3. island preparation- terraforming

  4. set up paths

  5. island build- acquire and install pre-made offices, meeting spaces, auditorium (to be completed by early September)

  6. finalize build- landscaping and cleanup (to be completed by mid-September)

2. Tenant Preparation

a. identify potential tenant health support groups (July 31)

b. contact potential tenants (August 8)

c. conduct application process

d. accept tenants (August 22)

e. assist tenant move-in (mid-September)

f. prepare for and conduct SL opening event to introduce tenant groups to SL (early October)

3. ongoing services to tenants

a. identify and apply for $3150 grant to pay tier for two full years of operation through July 2010 (early October)

b. plan for and conduct first administrative event, such as speaker on fundraising (early October)

Project Team

List team members, including any additional sponsors, partners, funders or allies to be associated with this project. Include any applicable information you would like to have considered, such as brief bios of participants, existing in-world locations or groups, existing URLs related to this project, or photos, videos, or other supplemental materials.

Health Support Coalition- The Coalition is a collaborative SL group that serves as a “means of sharing information, supporting each other in keeping groups viable, and assisting new groups to get their footing.” Officers include Carolina Keats and Gentle Heron. This SL group has 41 members who head different SL support groups on health or disability topics.

The following members of the Health Support coalition will be involved in running this project:



The following leaders of existing support groups within the Coalition have expressed support for this project, and are eager to participate:



The following potential leaders of emerging support groups have expressed interest in becoming Coalition members and receiving assistance in setting up their groups:

The following leaders of supportive organizations related to health and disability issues have expressed support for this project, and are willing to provide assistance to small and emerging SL support groups: